NOTES FROM MY CORNER OF THE WORLD
Food, thoughts & field notes
All notes · Food & NYC · Ethics · Healthcare Marketing
Restaurant finds and everyday curiosities from @walkineast, alongside the bigger questions I’m thinking through in bioethics. Pick a shelf and stay a while.
When Autonomy Harms
Living with Multiple Hereditary Exostoses (MHE), a rare genetic bone disorder marked by recurring tumors and persistent pain, gives me firsthand insight into how inherited conditions can drastically shape a person's world. The thought of having a child brings with it the possibility of passing on this disorder, with a 50% chance of inheritance.
Allocating Care Without Abandonment
Background injustice and genuine choice operate very differently across patients, and any plausible theory of justice in healthcare must account for this contrast. How do we allocate care without leaving anyone behind?
Through a Disabled Mind
While we should uphold the view that disabled bodies are simply different and deserving of social acceptance, the more intricate issue is whether and when it is permissible to intervene in cases where a body is not just different, but fundamentally at odds with its own capacities and sense of agency.
The Disability Paradox
People with Disabilities report same or better quality of life than people without disabilities.
Will I remove my disability from my child?
I use my personal experiences to argue if it is ethical to remove my disability for my offspring.